Saturday, January 1, 2011

A New Years Introduction :)

I am a child of God, a wife to my husband of 8 years, and the Mama to twin girlies.  I am an organizing freak {used to be more of a freak, now I'm a realistic mom}, thrive on structure and love to help.  Fascinated with all things medical and obsessed with taking too many photos.  Baking and running are my 'me time'.  I love family, friends and our church {who is family}.  I LOVE children...not just my own :)
I am blessed to wake up new every morning in Christ.
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Lance.  A God fearing husband and father, and loves his baby girls.  A faithful man of God.  Handsome, funny, and the provider for our family.  He loves to be outside, and serving in our church.  He teaches Sunday School to high school boys, sings on the worship team and is a youth worker.  He makes me laugh every single day and I thank God for blessing me with such a wonderful man.
 Grace just born WATERMARK
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Grace (twin A) Spent 156 days in the NICU at Children’s Hospital.  She suffered through three bouts of Necrotizing Entero Colitis (NEC), Bronchopulmonary Dysplasia (BPD), Nutritional Support, Gastro esophageal Reflux, IVH Grade III left & II right (brain bleeds), Chosestatic Jaundice, Osteopenia, Anemia, Respiratory Support and Retinopathy of Prematurity Plus Disease (ROP).  She currently has a refraction vision loss of -20 and is losing her vision.
Grace was intubated for 98 days before being moved to C-PAP, then the nasal canula. Today, Grace is the family clown.  She loves to make us laugh, is very spunky, one of the most compassionate and sweetest kids I have ever known, kind, and LOVES babies and high heel shoes!
 faith baby pic WATERMARK
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Faith (twin B) Spent 152 days in the NICU at Children’s Hospital.  She suffered through  Bronchopulmonary Dysplasia (BPD), Anemia, Bilateral Profound Hearing Loss, Auditory Neuropathy, Gastroesophageal Reflux, Bilateral Grade 3 Vesicoureteral Reflux (VCUG Kidney Reflux) has since been resolved, Osteopenia, Retinopathy of Prematurity Stage 2 (ROP), Pancreatic Insufficiency, Respiratory Support and Nutrition Support.
Faith was intubated for 73 days before being moved to C-PAP, the the nasal canula. Today, Faith wears bilateral hearing aids, but just starting the cochlear implantation process for her hearing loss and AN.  She is a big daddys girl, and has the best smile ever.  She needs to warm up to you before she like you but once she does, she is hammy.  She is obsessed with anything princess or dress up.  And never goes anywhere without her blankie!
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5 Comments:

mama faith said...

Happy New Year to you and your family~!

Ashley said...

Happy new year! It's so great to see Gods hand in your life ;)

Amber said...

Hi there! Happy New Year! Thanks so much for stopping by my blog. I'm a new follower. :)

Lara Bull said...

Hi there! I just stumbbled upon your blog and I have to say your girls are just beautiful! I wanted to tell you that my son has bilateral cochlear implant. He was implanted when he was 1 and 3. If you want to talk or just pick my brain or have any questions about anything, please feel free to email me larakbull@gmail.com. I hope everything goes well and I will be anxiously waiting for an update!

http://connorbull.blogspot.com

Take care,
Lara

The BabbyMama @ IKHIBF said...

Came across your blog while doing some research. I just wanted to say your family is absolutely beautiful and your girls are amazing!